Today was a pretty calm day. Abby got her central line out, and the nurses weren't able to get a new IV in (the doctor said not to try too hard - she's so hard to stick - he didn't want them torturing her for a "just in case" measure). Abby's nurse found her a swing so she was able to play around in there today (don't worry Robbie - she doesn't like it nearly as much as she likes yours ... but this was an acceptable second.) She was much more alert today - looking around and awake for a good part of the day. (Likely completely taken by the chick-flick-fest that we had going on today!)
They changed her feeds to 20 hours on, 4 hours off. So tomorrow they'll turn off her feeds at 1 PM and we'll try a bottle at 5 PM... you can think of us then! The doctor said that the difference between her taking some by mouth vs none by mouth is HUGE... whereas the difference between her taking some by mouth and all by mouth is really not significant. Keep your fingers crossed!
3 comments:
Yea, a swing! A boring day is a good day. So glad to read the improvements. Let us know what Callie help you need this week. And Robbie just wants "AbbEE" to be happy...swing away little one!
Rebecca
PS-Did Callie come home last night?
Happy bottle drinking, Abby, CHEERS! So glad to hear that you are continuing to need fewer and fewer accessories!
Keeping fingers crossed that the bottle feeding(s) went well today! Sounds like your new sleeping chair is just like the Johns Hopkins model. Hope you can stay on it!
Laura
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